Neurofibromatosis

I got type 1 too 😁

I love that you are making a NF plush. But I have NF1 not NF which is different. Can you consider making a NF1 and NF2 plush??? I don't think stuffing NF,Nf1,NF2 all into one plush is a good idea. :)

Please put “bumps” on the bunny as that is one of the defining characteristics of the disorder.

Also, please consider two different buns. Neurofibromatosis 1 and Neurofibromatosis 2 are two separate conditions. NF1 is a deletion on chromosome 17 while NF2 is a deletion on chromosome 22. The deafness and auditory issues are indicative of Type 2 while the “bumps” are indicative of Type 1.

Highly agreed! My mother suffers NF and this’ll be great representation for her

I’m sorry for posting again, but over the few days I was thinking of other things that could be added or shown on the bunny. Maybe the bunny could be a inch smaller than the others here since NF causes those with it (myself included) shortness. Maybe a way to show balance issues, though I’m not sure how to represent it. My first thought was slightly uneven legs but I’m not 100% .

Maybe even a way to show all 3 types of NF in this bunny. As I mentioned the balance issues would symbolize what else those with type 2 experience.

As for the 3rd type which is called Schwannomas a a rare genetic disorder that results in multiple tumors (called schwannomas) that grow on the coverings of peripheral nerves throughout the body and can cause debilitating pain and neurological dysfunction. And it can be really painful. From what I read on this one symptoms of schwannomatosis is intense pain, which can occur when a schwannoma grows and presses on a nearby nerve or other tissue. This can happen anywhere in the body, and some have symptoms in multiple areas. So maybe something that could represent that like maybe a different textured patch of fur on a random part of the body of where the pain could be. Maybe show tiredness and aches in the plush too since this affects all three types.

Maybe as a companion item it is something that shows how complex and broad this disorder is.