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27 comments
Highly agreed! My mother suffers NF and this’ll be great representation for her
Tyler•
I’m sorry for posting again, but over the few days I was thinking of other things that could be added or shown on the bunny. Maybe the bunny could be a inch smaller than the others here since NF causes those with it (myself included) shortness. Maybe a way to show balance issues, though I’m not sure how to represent it. My first thought was slightly uneven legs but I’m not 100% .
Maybe even a way to show all 3 types of NF in this bunny. As I mentioned the balance issues would symbolize what else those with type 2 experience.
As for the 3rd type which is called Schwannomas a a rare genetic disorder that results in multiple tumors (called schwannomas) that grow on the coverings of peripheral nerves throughout the body and can cause debilitating pain and neurological dysfunction. And it can be really painful. From what I read on this one symptoms of schwannomatosis is intense pain, which can occur when a schwannoma grows and presses on a nearby nerve or other tissue. This can happen anywhere in the body, and some have symptoms in multiple areas. So maybe something that could represent that like maybe a different textured patch of fur on a random part of the body of where the pain could be. Maybe show tiredness and aches in the plush too since this affects all three types.
Maybe as a companion item it is something that shows how complex and broad this disorder is.
Sasuke•
Hi!
I'm so happy to see this page!
Maybe I'll put the café au lait more randomly
But beside this I think it's perfect
Thank you, and can't wait to buy it!
Eden•
This is a cute bunny maybe more café au lait spots in varying sizes since people with it, myself included, tend to have many spots all over. Maybe the ears can be different to match the awareness colors like one blue the other green with lighter blue and green spots. Or the eyes could be green and blue (but keep the blindness in one).
I can't wait for it to become real. It's nice to feel seen.
Sasuke•
Really looking forward to this one. A Cafe spot of the nose, perhaps on the otherside would be particularly representative of someone Ill be buying this for.
And another person I knew with the condition had a spot over her nose too come to think of it..
Mykayla•
It looks so cute, it's not even out yet and I love it. I was born with it, I'm the only one in my imediate family that has it, first time mutation of it. I know people know about it and I remember years ago when I was little I saw a documentary on it. But other than that there isn't much representation on it. I have Type 1, and mine effects my lower half. I ended up needing an amputation due to a fracture causing a false joint in my ankle, I wore braces for support but the amputation was for quality of life improvement.
It makes me excited to see that this bunny is being considered and to see others here in the comments with Neurofibromatosis and the wide range it is. I really hope it gets made, it just feels nice having representation.
I would buy this bunny in a heartbeat once available ❤️
L•
I’m so happy to see this design. I do think the colors should be different, as blue and green are the awareness colors for Neurofibromas. And adding something to represent digestive issues as many of us deal with that as well. A majority of my abdominal cavity has been taken up by tumors, so I’m tube fed due to the tumors caused by NF, because there isn’t enough room in my abdominal cavity to fit enough food to keep me alive. The inability to eat enough food caused the doctors to label me “failure to thrive” as an adult, which very rarely happens. Neurofibromatosis can be an extremely painful, exhausting, and debilitating condition, thank you for bringing us some representation.
Harley•
I agree. I feel seen.
Karen•
Yes please. I have been waiting for this bun. I was diagnosed with this when I was 7. I am so excited for this
Karen•
I have nf1 and i approve the design. It is pretty accurate but still cute. Some spots are lighter than others _****_just seeing that you are thinking about making a bunny makes me smile.
27 comments
Highly agreed! My mother suffers NF and this’ll be great representation for her
I’m sorry for posting again, but over the few days I was thinking of other things that could be added or shown on the bunny. Maybe the bunny could be a inch smaller than the others here since NF causes those with it (myself included) shortness. Maybe a way to show balance issues, though I’m not sure how to represent it. My first thought was slightly uneven legs but I’m not 100% .
Maybe even a way to show all 3 types of NF in this bunny. As I mentioned the balance issues would symbolize what else those with type 2 experience.
As for the 3rd type which is called Schwannomas a a rare genetic disorder that results in multiple tumors (called schwannomas) that grow on the coverings of peripheral nerves throughout the body and can cause debilitating pain and neurological dysfunction. And it can be really painful. From what I read on this one symptoms of schwannomatosis is intense pain, which can occur when a schwannoma grows and presses on a nearby nerve or other tissue. This can happen anywhere in the body, and some have symptoms in multiple areas. So maybe something that could represent that like maybe a different textured patch of fur on a random part of the body of where the pain could be. Maybe show tiredness and aches in the plush too since this affects all three types.
Maybe as a companion item it is something that shows how complex and broad this disorder is.
Hi!
I'm so happy to see this page!
Maybe I'll put the café au lait more randomly
But beside this I think it's perfect
Thank you, and can't wait to buy it!
This is a cute bunny maybe more café au lait spots in varying sizes since people with it, myself included, tend to have many spots all over. Maybe the ears can be different to match the awareness colors like one blue the other green with lighter blue and green spots. Or the eyes could be green and blue (but keep the blindness in one).
I can't wait for it to become real. It's nice to feel seen.
Really looking forward to this one. A Cafe spot of the nose, perhaps on the otherside would be particularly representative of someone Ill be buying this for.
And another person I knew with the condition had a spot over her nose too come to think of it..
It looks so cute, it's not even out yet and I love it. I was born with it, I'm the only one in my imediate family that has it, first time mutation of it. I know people know about it and I remember years ago when I was little I saw a documentary on it. But other than that there isn't much representation on it. I have Type 1, and mine effects my lower half. I ended up needing an amputation due to a fracture causing a false joint in my ankle, I wore braces for support but the amputation was for quality of life improvement.
It makes me excited to see that this bunny is being considered and to see others here in the comments with Neurofibromatosis and the wide range it is. I really hope it gets made, it just feels nice having representation.
I would buy this bunny in a heartbeat once available ❤️
I’m so happy to see this design. I do think the colors should be different, as blue and green are the awareness colors for Neurofibromas. And adding something to represent digestive issues as many of us deal with that as well. A majority of my abdominal cavity has been taken up by tumors, so I’m tube fed due to the tumors caused by NF, because there isn’t enough room in my abdominal cavity to fit enough food to keep me alive. The inability to eat enough food caused the doctors to label me “failure to thrive” as an adult, which very rarely happens. Neurofibromatosis can be an extremely painful, exhausting, and debilitating condition, thank you for bringing us some representation.
I agree. I feel seen.
Yes please. I have been waiting for this bun. I was diagnosed with this when I was 7. I am so excited for this
I have nf1 and i approve the design. It is pretty accurate but still cute. Some spots are lighter than others _****_just seeing that you are thinking about making a bunny makes me smile.